Hurry up and wait

When I got to the hospital today, he was wide awake and alert! I LOVE those days! It feels like he's looking right at me! :) His nurse said he'd been a little fussy earlier and so she'd given him some morphine, which means our little party didn't last long before he was fast asleep. Even when he's sleeping, I just enjoy sitting by his bed and watching him sleep. I did get a chance to take a quick video before he fell asleep. I'll try to post it tomorrow.

Monday came and went, the surgeons came and went, the plan came and went. The surgeons seem to think that Lawson is slowly making just enough progress that surgery is too aggressive at this point. So the new plan is to wait. :(

According to the NP, Lawson continues to defy all logic! She admitted that they've seen all the 'problems' that he has exhibited, just not all in the same child! Other doctors have said they've pulled out every trick they have in dealing with sick babies! They are currently trying to wean him off the jet ventilator and onto the conventional ventilator, which is a step in the right direction. His chest tube has been removed and there does not seem to be any more air accumulating in the pleural area. He does still have the extensive blebs filling the left lung, but we're just waiting to see what will happen with them. When I was leaving this evening, his CO2 levels were up a bit. They have had to stop his feeds (breastmilk), since his digestive system does not seem to be tolerating it because of the morphine. They did a stomach x-ray and found a large section of the intestine that was filled with air. They've called for another one to make sure the air is actually IN the intestine and not in any other abdominal area, which could be dangerous. Hopefully it's just a little gas in the intestines that can be dealt with quickly.