Wednesday, May 13, 2009

Busy Day

When I dropped Lacey off at daycare this morning, we saw one of her little friends from class, Tyler and his grandmother, who were just visiting for a few minutes. He's the child who had surgery at Duke to remove what was thought to be a tumor, right around the same time as Lawson's surgery. Both of our families celebrated successful surgeries; it seemed that it wasn't a tumor after all. However, Tyler ended up having to have another surgery and this time it was found to be malignant tumors. He will also need to undergo chemotherapy. His family will need to travel to Mass Gen (I think I remember that correctly.) for the special type of chemo that will help him. His grandmother says that there is a very good chance that the chemo can completely cure him. So tonight I am asking for your prayers for Lacey's friend, Tyler and his family. We have all seen the miracles that can happen when many of us come together in prayer!!

I got to the hospital early today and was stunned to find that Lawson's been moved into the Transitional Care Nursery, TCN!!! They told us a long time ago that when your child gets moved there, he is definitely on his way home!! They still won't tell us how much longer, but this move is HUGE!!! I felt like doing cartwheels down the the long hallway leading to the TCN! :) I now have to pass through two doors labeled "Authorized Personnel Only"; I feel so important! :) I saw his little crib as soon as I walked through the door. Unlike the NICU with a whole bunch of smaller rooms, the TCN is one large room with about 14 beds and 5 or 6 nurses. The TCN has a core set of nurses, so we probably won't be seeing Lawson's Primary Nurses much any more. We love our Primaries bunches, but if this is our ticket home, we'll take it!

I met with lactation again today and was again amazed at my little champ! If yesterday's session was great, then today went even better! Then later in the day Brian and I both met with the speech pathologist while she was practicing swallowing with Lawson. I made a little video clip of what she does during their session. Tomorrow our hero, Dr. Rice, will be removing his broviac, the last thing poking into Lawson's little body. I can see the light at the end of the tunnel!

6 comments:

  1. This is so awesome! Brian, I am so proud of you! Those of us at DAN who know you (and love you) - see how you've grown so much - I'm just shaking my head and tearing up watching this. Mitzi, you are the best - how strong you are! I so look forward to reading this blog and am amazed at you! This blog has to be published! Lawson will treasure these words as he looks back over the years! And as he latches on, I remember when Jess was a baby and nursing, she always had to have that finger to hold on to and the "grunts" were the best, for 9 glorious months! Oh, and tell Lacey - the tadpoles are so cool! I know she's proud! Love to you all! Julie

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  2. What an amazing video! Lawson is a trooper! Thanks so much for sharing his life with us! Raine goes to the computer every morning to see an update and she is only 2! We love you guys and are praying daily for your entire family. We will pray for Tyler that he won't even need the chemo. That God will take all of the cancer out before it is even necessary. Our God can heal! Praise him! Love and prayers, Amanda

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  3. Wow!!! He looks AMAZING!!! 'B' u rock, look like a natural dude! Great job! Try those cartwheels Mitz, just get somebody to put it on film, I'm sure something Lacey and Lawson would just cherish down the road-happy memories and laughs!
    So SOOO happy for the Levering crew! Keep that rockin happy news coming! Go Lawson Go, TCN-then Home sweet HOME!!! love u all!
    Lauri :)
    My prayers r still with u guys and Tyler too, good luck little Tyler, we r cheering for u!!

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  4. Mitzi & Family....Lawson is so pretty..Those eyes....He is truly a beautiful baby...Hope he will soon be home and we know he will....God is Great!.....The Kiser's

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  5. This is absolutely wonderful and amazing After all that Lawson has gone through. God has blessed him and made him a strong little fighter. Our dear Lord will help Tyler as well.
    I don't know if you can get the show Quick Study on tv in yout area. Try www.thestreamtv.com Lawson is on our Watch and Pray segment for May 22 and 26. Many, many people from all around the world will be praying for Lawson on those days. Here in Orangeville, Lawson is in all our prayers every day. May God greatly bless all of you.
    The Wake family
    Quick Study TV
    Good Friends Fellowship Church

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  6. What a beauty... picture of health... looking like daddy... happy baby boy! "BIG GOD's" perfect demonstration of What HE Can DO! I received an e-mail last week, late one evening after a day of receiving troubling news from 3 wonderful grown offsprings. My human spirit was low until I read an e-mail from a son-in-law's mother, (a cancer survivor who doesn't even readily do e-mailing). It was called "BIG GOD"!
    A great reminder of who HE IS! We've all witnessed HIS capabilities when we pray, trust and have faith. Tyler is covered by our "BIG GOD" as well. HE loves us and has proven to be faithful to us! Behold HIS miracles! Continue giving thanks for HIS good works with Lawson as we bring Tyler before HIM too, as well as each of our concerns! Thank you Leverings for your continued show of STRENGTH and JOY sharing.
    Love,
    Jackie Scott

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